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Chronic Fatigue Syndrome/Experts

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Candy

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I was diagnosed (finally) with CFIDS (Chronic Fatigue Immune Disfunction Syndrome) in 1993. I am currently in "remission" (for whatever that`s worth). I have experienced the full range of emotions that go along with this disease and will be glad to "listen" to anyone who needs to vent their fears, confusion, frustrations, anger...(it helps). I can share what worked for me and what others have shared that worked for them. I can steer you in directions of help (ie: Social Security Disability claims, natural remedies, support groups, etc.). You are not alone.

Suzan Jackson

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I have had CFS since March 2002. My 14-year old son and 10-year old son also has CFS. I have a scientific background (chemical engineering) and have read and researched extensively to try to help myself and my sons to improve our symptoms, with some success. I`ve also conferred with some of the top CFS doctors in the U.S. I have a lot of hard-won experience working with school systems to get appropriate support for my sons. This is a very debilitating and isolating illness, and I would be glad to help anyone else who is struggling with CFS themselves or with a family member. You can read about our experiences in learning to live with CFS at my blog: www.livewithcfs.blogspot.com.

Recent Answers

2009-10-27 excercise:

Hi, Deborah - First, I'd like to apologize for the delay in getting back to you. I've been severely ill with a bad CFS flare-up that lasted over a month, so my computer time has been pretty limited

2009-10-16 cfs/bp/or neuro?:

Dear Kate - I apologize for not getting back to you sooner. I've been very, very ill myself for weeks and unable to spend much time at the computer. I have Chronic Fatigue Syndrome (CFS), an immune

2009-10-15 CFS but maybe not:

First I am going to give you a list of Natural Remedies that have helped me. Vitamins and Minerals Maximum Daily Dose Malic acid/Magnesium hydroxide 1,800-6,000 mg (take in 6 small doses) Beta

2009-10-13 Possible CFS?:

While debilitating fatigue is the hallmark of chronic fatigue syndrome (CFIDS), a feeling of weariness is not, by itself, a sure sign of this illness. People with CFIDS have a combination of symptoms,

2009-10-13 CFS?:

Dear Genna - I'm not really an expert on pain, but I'll do my best to answer your questions. I've had CFS for 7 years, so that's what I know best. It is possible that you have CFS, although pain

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