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Rare Diseases/Experts

Expert	Average Ratings	Expertise
Tina Budde U.S. Available View Profile Ask A Question View Past Answers	Knowledgeability 9.90 Clarity of Response 9.90 Timeliness 9.94 Politeness 9.98 Total Questions 274	I can help on all aspects of the condition, treatment, support. I cannot diagnose but only give my personal expertise, and refer you to others who can help. I am in touch with doctors, therapists, and professionals on a regular basis. I can help with disability issues pertaining to lymphedema or cancer.
Gena Brumitt Gruschovnik Canada Available View Profile Ask A Question View Past Answers	Knowledgeability 10.0 Clarity of Response 10.0 Timeliness 10.0 Politeness 10.0 Total Questions 13	I can answer questions about any form of Epidermolysis Bullosa, a group of rare genetic diseases. I am a member of an extended network of EB-experienced medical professionals from around the world. I am able to offer advice related to personal and family matters, the status of research around the world, human rights, self-advocacy, relationships, how to create awareness about EB, and how to find local support in every country.

Expert

Average Ratings

Expertise

Tina Budde

U.S.

Available

I can help on all aspects of the condition, treatment, support. I cannot diagnose but only give my personal expertise, and refer you to others who can help. I am in touch with doctors, therapists, and professionals on a regular basis. I can help with disability issues pertaining to lymphedema or cancer.

Gena Brumitt Gruschovnik

Canada

Available

I can answer questions about any form of Epidermolysis Bullosa, a group of rare genetic diseases. I am a member of an extended network of EB-experienced medical professionals from around the world. I am able to offer advice related to personal and family matters, the status of research around the world, human rights, self-advocacy, relationships, how to create awareness about EB, and how to find local support in every country.

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Recent Answers

2009-11-17 Distended stomach:

Terry, you should make an appointment with your doctor and have some tests. The first would be a cat scan of the abdomen. I don't know if you are male or female with the name Terry but with women you

2009-10-29 Addison's Disease:

Hi Nicole, First off the doctor at the hearing is paid to say exactly what is wanted by the govt to deny you benefits because they don't want to have to pay benefits out. Addisons as you know is

2009-10-16 or is ruining my life:

Hi Rashaan, First off, you mention cat scans, exams, and sonograms, but not blood work, has any been done and what did they look for? Were some of the blood tests hormone tests? Usually when you

2009-10-07 help me:

Akash, usually 14 days is when you see severe symptoms and complete spread is roughly 2 weeks to a month. I know you are pretty worried and upset so I would suggest you go to your doctor and have a saliva

2009-10-05 help me:

The first symptoms are twitching and tingling sensations in the bite or affected area. The other symptoms are: •irritability •excessive movements or agitation •confusion •hallucinations •aggressiveness

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