Alzheimer`s Disease/Expert Profile

Expertise

Several years direct experience as caregiver for family member who died of end stage AD. Did lots of research and dealt with a lot of health care professionals and caregivers over the 7 years from diagnosis to the end. Used various care options from community based resources to increasing levels of institutional. Mother of three, two born during our loved one's decline, so I know what it is to be the ham in the sandwich, taking care of the older generation and the younger at the same time and trying to balance everyone`s needs. Ask me, I`ve probably been there, done that. We made lost of mistakes and learned everything the hard way - but you don`t have to! If I can`t answer your question, I`ll steer you to a place or person who can.

Experience in the area

Currently a program manager for a large utility company. My Alzheimers experience comes from having the illness in our family. Out of necessity, we did a lot of research in order to understand the disease, plan for what might come next, and make the right decisions to help and support our loved one. Please note, I am a Canadian living in Toronto, and therefore am not the best person to ask about US regulations and insurance rules!

What do you like about this subject?

Absolutely nothing. This is a horrible disease and has a terrible impact on families. The positive that comes out of it is being able to help other people who need support and information.

What do you still hope to achieve/learn in this field?

To be helpful - to give accurate, timely, useful information and advice, in a compassionate and supportive manner.

Something interesting about this subject that others may not know:

Many families do not realize that "senility" is not a normal part of aging. It always has a cause, and it should never be accepted without a thorough medical exploration. There are treatable causes of confusion, and new drugs to help slow down the progress for incurable causes.

Something controversial or provocative about this subject

Personal peeve: Doctors who do not take confusion and forgetfulness reported by family members seriously or who do not adequately explain or suggest supports or resources. Caregivers need information, so they can understand what is likely to happen as dementia progresses,and make informed plans for future care with all the financial, legal, emotional and practical issues that go with it.