Barbara Uggen-Davis - Living With Disabilities - Disability Issues - News/Issues

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Expert Profile: Barbara Uggen-Davis

Expertise: I can answer questions related to coping with Ehlers Danlos Syndrome including: bracing, symptoms, alternative therapies, support groups, etc.

Experience in the area
Although I am not a doctor, I have extensive experience in dealing with EDS from personal experience and from being actively involved in EDS Support and Education groups since 1994.

Organizations
EDS Today, Canadian Ehlers-Danlos Association, UK EDS Support Group.

Publications
EDS Today. I am both a writer and editor for the publication.

Education/Credentials
I have a BA in Business Administration/Accounting and an MBA in Business Management/Information Systems. I work in the medical field with 12 years experience in over-the-counter bracing and support products. In 2007, I joined a medical technology company.

Ask a Question	View Past Answers	View Ratings

What do you like about this subject? I have Ehlers-Danlos Syndrome and I like helping others cope with EDS.

What do you still hope to achieve/learn in this field? I hope to continue to learn about new research in EDS.

Something controversial or provocative about this subject EDS often goes undiagnosed or misdiagnosed due to lack of awareness by the medical community.

Average Ratings
Prestige Points: 428
Knowledge	9.70 Best of the best
Clarity of Response	10.0 Best of the best
Timeliness	10.0 Best of the best
Politeness	10.0 Best of the best
Number Of Questions (in Past 24 Hours)		0
Max Questions to be Asked (in 24 Hour period)		15
Total Questions (since joining AllExperts)		41

Recent Reviews from Users

Knowl	Clarity	Time	Politeness	Date
10	10	10	10	08/24/08
10	10	10	10	07/20/08
7	10	10	10	04/22/08
10	10	10	10	10/24/07
10	10	10	10	08/02/07

User Comments

Thank you for your prompt reply!
(Sirpa on 08/24/08)

Thank you so much Barbara for your prompt reply! Your information and links will be a great help. Best..Mike E.
(Mike on 07/20/08)

Thank you for your responce. I plan on looking up the doctors. I appreciate your kindness.
(Amy on 04/22/08)

thanks u!
(David on 10/24/07)

Thank you for your speedy response and for informing me that it is worth being tested. I will now feel comfortable approaching my doctor and not feel
(Nicole on 08/02/07)

View All Comments

Ask a Question	View Past Answers	View Ratings

Recent Answers from Barbara Uggen-Davis

2008-08-25 EDS type III and pregnancy: People with different types of EDS can varying symptoms. Another person with EDS, Maggie Buckley, wrote a very good article explaining EDS symptoms as poker chips. I'll try to paraphrase her example...

2008-08-20 EDS type III and pregnancy: My first question for you is, have you had a skin biopsy test for VEDS? For many years, the skin biopsy was the only test for VEDS. The blood test is not 100% accurate, but it is close. If you feel...

2008-08-12 ehlers-danlos type lll: EDS can be a reason to get a disability plate/placard if your symptoms warrant it. EDS by itself doesn't necessarily automatically mean you are eligible for a placard because symptoms can vary widely...

2008-07-20 Possible Future Disability Issue: Mike, I am not an expert on social security disability (SSDI), so I encourage you to speak with a social security attorney or consultant. I know several people with EDS who have applied for SSDI, but...

2008-07-17 EDS: Michael, I am going to refer your question to my father, Michael Uggen, LMP. He is a licensed massage therapist who also has EDS. He is currently attending a seminar out of town, but will be back...

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