Living With Disabilities/Expert Profile

Expertise

I can answer questions related to coping with Ehlers Danlos Syndrome including: bracing, symptoms, alternative therapies, support groups, etc.

Experience in the area

Although I am not a doctor, I have extensive experience in dealing with EDS from personal experience and from being actively involved in EDS Support and Education groups since 1994.

Organizations
EDS Today, Canadian Ehlers-Danlos Association, UK EDS Support Group.

Organizations

EDS Today, Canadian Ehlers-Danlos Association, UK EDS Support Group.

Publications

EDS Today. I am both a writer and editor for the publication.

Education/Credentials
I have a BA in Business Administration/Accounting and an MBA in Business Management/Information Systems. I work in the medical field with 12 years experience in over-the-counter bracing and support products. In 2007, I joined a medical technology company.

Education/Credentials

I have a BA in Business Administration/Accounting and an MBA in Business Management/Information Systems. I work in the medical field with 12 years experience in over-the-counter bracing and support products. In 2007, I joined a medical technology company.

What do you like about this subject?

I have Ehlers-Danlos Syndrome and I like helping others cope with EDS.

What do you still hope to achieve/learn in this field?

I hope to continue to learn about new research in EDS.

Something controversial or provocative about this subject

EDS often goes undiagnosed or misdiagnosed due to lack of awareness by the medical community.