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Barbara Uggen-Davis

U.S.

Available

Expertise

I can answer questions related to coping with Ehlers Danlos Syndrome including: bracing, symptoms, alternative therapies, support groups, etc. If your question does not relate to Ehlers-Danlos Syndrome, I am not able to answer you.

Experience in the area

Although I am not a doctor, I have extensive experience in dealing with EDS from personal experience and from being actively involved in EDS Support and Education groups since 1994.

Organizations

EDS Today, Canadian Ehlers-Danlos Association, UK EDS Support Group.

Publications

I was both a writer and editor for EDS Today for 10 years.

Education/Credentials

I have a BA in Business Administration/Accounting and an MBA in Business Management/Information Systems. I work in the medical field with 12 years experience in over-the-counter bracing and support products. In 2007, I joined a medical technology company.

What do you like about this subject?

I have Ehlers-Danlos Syndrome and I like helping others cope with EDS.

What do you still hope to achieve/learn in this field?

I hope to continue to learn about new research in EDS.

Something controversial or provocative about this subject

EDS often goes undiagnosed or misdiagnosed due to lack of awareness by the medical community.

Average Ratings

Recent Reviews from Users

User	Date	K	C	P	Comments
Muhsin	02/19/11	8	9	10	Thank you brother for replying.
Russell	10/05/10	10	10	10	kk thanks. And yea I've been trying .....
Cameron	09/24/10	10	10	10
Carly Huff	09/05/10	10	10	10	Thank you so much for this extensive .....
Russell	08/11/10	10	10	10	Thanks a lot! It does sound more .....

Recent Answers from Barbara Uggen-Davis

2012-01-26 EDS professional help in British Columbia:

Hi Michelle, Sorry for the delay in getting back to you. I have emailed a friend with EDS in Canada who may be able to help with referrals. I was hoping to hear back by now. I will follow up with

2011-09-16 VEDS:

Your doctor can take the skin biopsy and ship it to the lab in Washington for testing. Unfortunately, I can not tell you if your features appear to be VEDS because that could be construed as practicing

2011-09-15 VEDS:

Yes, I am familiar with VEDS and can often recognize the distinct facial features. However, facial features and symptoms alone are not enough to base a diagnosis. These are indicators, but not true diagnostic

2011-03-01 Symptoms & Diagnosis:

Lisa, You certainly have enough of the traditional EDS signs/symptoms to make it worth investigating. There are several types of EDS and each type is diagnosed differently. Since you are in So Cal

2011-02-15 My hands and feets shivers of cold:

My expertise is in specifically Ehlers-Danlos Syndrome, a connective tissue disorder. Cold hands/feet can be related to circulatory issues, side effects of certain medication, Raynaud's disease, certain

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