Fibromyalgia/Expert Profile


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Where can I find a doctor to treat my fibromyalgia?
What kind of doctor treats fibromyalgia?
What kinds of non-medical things can I do to help my fibromyalgia?
Is (fill in blank) a symptom of fibromyalgia?
Where can I find a support group for fibromyalgia?
Where can I find a listing of the Tender Points of fibromyalgia?
The doctor just told me I have fibromyalgia. What are some things I should do first?
What is a good book to read about fibromyalgia?

Past/Present Clients

Hundreds of fibromyalgia patients worldwide who have written emails to me since 1996 after they've seen my fibro website. I've been a fibromyalgia SURVIVOR myself since 1993.

What do you still hope to achieve/learn in this field?

New ways to that I can help my fibromyalgia myself and also learn of new ways the doctors and clinicians have of helping us.

Something interesting about this subject that others may not know:

Fibromyalgia is considered a syndrome, not a disease. It is a collection of symptoms, but not a defined DISEASE. 5/30/05...UPDATE...there is new information through the Fibromyalgia Network that fibro may actually be a disease.

Something controversial or provocative about this subject

Whether fibromyalgia is progressive or not seems to be an interesting controversy right now. Some patients do seem to have a "progressive" course in that their fibro gets worse each year. Because we have no measurements (fibromyalgia doesn't cause any sort of degeneration/deformity of any part of the body), we really can't term it progressive. Currently I'm trying to think of a better term.

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    K = Knowledgeability    C = Clarity of Response    P = Politeness
UserDateKCPComments
sandra07/30/1010Thanks for getting back so quickly
joyce hall11/16/0910I asked some very specific questions and .....
becci05/22/09101010very good thankyou
Bonnie05/21/09101010 
cynthia05/07/09101010thank you very much for the advice .....

Recent Answers from Joyce A. McKenzie

2010-12-24 Help with my medications:

Hi Susan...you can start researching here:    www.needymeds.com    ...I do know that you have to have your doctor send in a prescription and you need to pick up the free meds at your doctor's office.

2010-05-04 spasams through the night fibromalgia sufferer:

Hi...I'm not a medical professional but when I was having my initial problems with sleep (I've had fibro since 1993)...my doctor gave me Trazodone and it really helped a lot. I'm not saying anyone should

2010-01-23 progressive fibromyalgia:

Hi Michele...first, I'm not a medical professional, and also do not keep ongoing statistics on the prevalence nor the progressiveness of fibromyalgia.    But what I've seen is, in some cases, yes it does

2009-11-15 Fibromyalgia symptoms:

Hi Joyce! (nice name :)  ...if your daughter has already been dxed with fibro, she has had the Tender Points test done, which is the only instrument we have to dx fibro. It outlines 21 spots on the body

2009-08-25 Fibro and other things:

Hi Lydia...I'm sorry you're having so many problems. I really don't know about the 30% of fibro patients getting lupus...I've never heard of that. I have heard that childhood trauma can contribute to the

 

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