Joyce A. McKenzie - Fibromyalgia - Chronic Fatigue Syndrome/Fibromyalgia - Health/Fitness

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Expert Profile: Joyce A. McKenzie

Expertise: Where can I find a doctor to treat my fibromyalgia?
What kind of doctor treats fibromyalgia?
What kinds of non-medical things can I do to help my fibromyalgia?
Is (fill in blank) a symptom of fibromyalgia?
Where can I find a support group for fibromyalgia?
Where can I find a listing of the Tender Points of fibromyalgia?
The doctor just told me I have fibromyalgia. What are some things I should do first?
What is a good book to read about fibromyalgia?

Past/Present clients
Hundreds of fibromyalgia patients worldwide who have written emails to me since 1996 after they've seen my fibro website. I've been a fibromyalgia SURVIVOR myself since 1993.

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What do you still hope to achieve/learn in this field? New ways to that I can help my fibromyalgia myself and also learn of new ways the doctors and clinicians have of helping us.

Something interesting about this subject that others may not know: Fibromyalgia is considered a syndrome, not a disease. It is a collection of symptoms, but not a defined DISEASE. 5/30/05...UPDATE...there is new information through the Fibromyalgia Network that fibro may actually be a disease.

Something controversial or provocative about this subject Whether fibromyalgia is progressive or not seems to be an interesting controversy right now. Some patients do seem to have a "progressive" course in that their fibro gets worse each year. Because we have no measurements (fibromyalgia doesn't cause any sort of degeneration/deformity of any part of the body), we really can't term it progressive. Currently I'm trying to think of a better term.

Average Ratings
Prestige Points: 1402
Knowledge	9.87 Best of the best
Clarity of Response	10.0 Best of the best
Timeliness	10.0 Best of the best
Politeness	10.0 Best of the best
Number Of Questions (in Past 24 Hours)		0
Max Questions to be Asked (in 24 Hour period)		3
Total Questions (since joining AllExperts)		244

Recent Reviews from Users

Knowl	Clarity	Time	Politeness	Date
10	10	10	10	06/07/07
9	10	10	10	06/08/06
10	10	10	10	09/26/05
10	10	10	10	05/29/05
9	10	10	10	04/23/05

User Comments

Joyce, Thank you so much for your quick response to my question and your suggestions as well!
(cheryl on 06/07/07)

Thanx anyways Joyce, i will get that test and let you know.-A
(Avi on 09/26/05)

THANKS JOY...SOUNDS LIKE THE DIAGNOSE MIGHT BE RIGHT. I WILL CHECK YOUR WEB SIGHT NOW....THANKS SO MUCH
(Deja on 05/29/05)

thanks very much for the quick and helpful answer!
(Sarah Holmes on 04/23/05)

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Recent Answers from Joyce A. McKenzie

2008-09-27 fibromyalgia: Hi...not aware that fibromyalgia specifically causes hair loss, but I know that stress does...and stress and fibro go hand-in-hand. Having a chronic illness of any kind can be very lonely and discouraging...

2008-06-19 Fibromyalgia: Hi...if you feel your sister is not getting the right kind of treatment, best to contact your nearest teaching hospital...and since she has two conditions that are 'rheumatic' in nature, ask for a consult...

2008-01-03 advice?: Hi...most of your questions are out of my area of expertise, but I will say swimming in a WARM pool (see the Arthritis Foundation's website to find out the temp range) is very good. I don't know about...

2008-01-02 Symptoms?: Hi Kathy...you would need to be evaluated by a rheumatologist or other skilled phyician...ask them to do the Tender Points test (and ask BEFORE you make an appointment as not all doctors are familiar with...

2007-10-25 FM Typical Responses: Yes, Kim, this is a common problem, although these days getting less common as fibro is becoming more 'accepted'. The trick is to find docs that treat fibro aggressively (try your nearest teaching hospital...