Blindness/Visual Impairment/Expert Profile

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I can answer questions related to Familial Exudative Vitreo-Retinopathy (FEVR), as well as more general questions concerning blindness in children.

Experience in the area

I have five family members with Familial Exudative Vitreo-Retinopathy (FEVR), my husband and four of my six children. My husband and my two youngest children are blind, and my two girls are losing vision. We deal closely with Dr. Michael Trese and his associates in Royal Oak, MI, making trips to see him about once a month for somebody to have surgery or an angiogram or some other exam or procedure. I am familiar with much of the research on FEVR, and can research answers to questions I don't know.


I am a member of both the NFB and AFB parents' organizations.


I have some time in college.

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Recent Answers from Elayne Glantzberg

2017-01-29 Coloboma:

Because a coloboma is a birth defect and not a disease process, it generally does not cause further loss of vision later in life.  However, your opthalmologist is the best person to answer this question

2015-07-14 vision and heat stroke:

Heat stroke is a bit of a misnomer and not actually a stroke.  A stroke is caused by either bleeding in the brain or blockage of a blood vessel in the brain, both leading to oxygen deprivation and eventual

2015-03-27 Tactile surfaces?:

The American Printing House for the Blind ( has an assisted communication card set in their catalog, the Standardized Tactile Augmentative Communication Symbols kit.  You could purchase this

2014-09-06 stinging eyes:

One way to help your eyes flush out is to pull your eyelid out and down a little while blinking rapidly.  This gives the tears room to flush away any stray particles.  If that doesn't work, you can try

2014-01-18 Dad is Experiencing Colored Lights in Vision:

My family have reported to me that they primarily see white flashes.  However, a quick search online indicates that color is also possible.  Again, I remind you that I am not a doctor, and that you should


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