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I can answer questions related to Familial Exudative Vitreo-Retinopathy (FEVR), as well as more general questions concerning blindness in children.
I have five family members with Familial Exudative Vitreo-Retinopathy (FEVR), my husband and four of my six children. My husband and my two youngest children are blind, and my two girls are losing vision. We deal closely with Dr. Michael Trese and his associates in Royal Oak, MI, making trips to see him about once a month for somebody to have surgery or an angiogram or some other exam or procedure. I am familiar with much of the research on FEVR, and can research answers to questions I don't know.
I am a member of both the NFB and AFB parents' organizations.
I have some time in college.
|Dave||11/21/15||10||10||10||Thank you for being so prompt..|
|James||04/15/15||10||10||10||Seeing the cost I will clearly need .....|
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The American Printing House for the Blind (www.aph.org) has an assisted communication card set in their catalog, the Standardized Tactile Augmentative Communication Symbols kit. You could purchase this
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I am not a doctor, but I do have personal experience with retinal issues with symptoms like you describe. Your father's age and history of nearsightedness both put him at risk for retinal issues like