I was diagnosed (finally) with CFIDS (Chronic Fatigue Immune Disfunction Syndrome) in 1993. I am currently in "remission" (for whatever that`s worth). I have experienced the full range of emotions that go along with this disease and will be glad to "listen" to anyone who needs to vent their fears, confusion, frustrations, anger...(it helps). I can share what worked for me and what others have shared that worked for them. I can steer you in directions of help (ie: Social Security Disability claims, natural remedies, support groups, etc.). You are not alone.
Since my diagnosis, I have done a lot of research on the illness. I started the first support group in my area and organized "training" for physicians, nurses and care givers who believed in this disease and wanted to treat their patients that suffered . (It helped that I had been a Paramedic for 10 years before getting sick and had some medical knowledge.)
National CFIDS Association, American Association of Emergency Medical Technicians and Paramedics
Emergency Medical Technician II, Emergency Intensive Care Paramedic
A cure!!!
The controversy is the "stigma" attached to it. First of all, no one believes you. They hear "fatigue" and stop listening. Second, most doctors don't believe in it as a real disease or they just don't understand it. Third, most doctors don't know how to diagnose it. Fourth, it takes a battle to get Social Security to accept it as a disability.
| User | Date | K | C | T | P | Comments |
|---|---|---|---|---|---|---|
| deborah | 10/26/09 | 10 | 10 | 10 | 10 | Thanks for your answer. I hope I ..... |
| Mekenzie | 10/08/09 | 10 | 10 | 10 | 10 | Thank You i have heard of the ..... |
| meghan | 08/20/09 | 10 | 10 | 10 | 10 | |
| Allison | 01/29/09 | 10 | 10 | 10 | 10 | I appreciate the answers and all the ..... |
| Margaret | 10/01/08 | 10 | 10 | 10 | 10 | From msurbrook@comcast.net...I will tell you ..... |
First I am going to give you a list of Natural Remedies that have helped me. Vitamins and Minerals Maximum Daily Dose Malic acid/Magnesium hydroxide 1,800-6,000 mg (take in 6 small doses) Beta
While debilitating fatigue is the hallmark of chronic fatigue syndrome (CFIDS), a feeling of weariness is not, by itself, a sure sign of this illness. People with CFIDS have a combination of symptoms,
In order to determine if you have CFIDS you need your doctor to run a blood test for the Epstein Barr Virus. Until you have those results I can't really advise you further so if the results come back
You need to have her doctor run an Epstein Barr blood test. If it comes back positive then she's got CFIDS. Until you have those results there isn't much I can recommend right now. But once you get
I'm not a doctor...just a CFIDS sufferer...so I cannot say one way or the other. You would need a doctor to run an Epstein Barr Virus test on you to find out. I am in California and here if you don't

©2009 About.com, a part of The New York Times Company. All rights reserved.