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I have had CFS since March 2002. My 14-year old son and 10-year old son also has CFS. I have a scientific background (chemical engineering) and have read and researched extensively to try to help myself and my sons to improve our symptoms, with some success. I`ve also conferred with some of the top CFS doctors in the U.S. I have a lot of hard-won experience working with school systems to get appropriate support for my sons. This is a very debilitating and isolating illness, and I would be glad to help anyone else who is struggling with CFS themselves or with a family member. You can read about our experiences in learning to live with CFS at my blog: www.livewithcfs.blogspot.com.
Have had CFS/CFIDS since 2002.
Two young sons have CFS/CFIDS.
CFIDS Association of America
Various listserves that provide up-to-date information on CFS research.
|Regina||07/06/16||10||10||10||Suzan has given me a wealth of .....|
|Manni||07/01/14||10||10||10||Hi Sue, I am really sorry about .....|
|Bonnie||05/18/12||10||10||10||Thankyou so much with answering my questions .....|
|Melissa||08/09/11||10||10||10||thank you very much|
Sorry for the delay in responding - I was busy with my family over the holiday weekend, and I wanted to have plenty of time to devote to answering your questions. It sounds as if your daughter almost
Well, the exercise intolerance is considered to be the central characteristic of CFS, so if you don't have that, then CFS is less likely...but the illness starting with mono DOES sound like CFS. Ignore
Dear Phillip - First, I apologize for the delay in responding to you. My own health was poor this week, so I got behind on e-mails, etc. What you're describing DOES sound like CFS, also known as
Hi, Manni - I'm so sorry to hear how your friend has been suffering. Sorry for the delay in getting back to you - we just found out my dad has cancer and traveled to see him this past weekend. I am
HI, Mollie - I'm sorry to hear you have been suffering so much for so long. Have you seen doctors? With such a large number of serious symptoms, you definitely need urgent medical care, but I do