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I have had CFS since March 2002. My 14-year old son and 10-year old son also has CFS. I have a scientific background (chemical engineering) and have read and researched extensively to try to help myself and my sons to improve our symptoms, with some success. I`ve also conferred with some of the top CFS doctors in the U.S. I have a lot of hard-won experience working with school systems to get appropriate support for my sons. This is a very debilitating and isolating illness, and I would be glad to help anyone else who is struggling with CFS themselves or with a family member. You can read about our experiences in learning to live with CFS at my blog: www.livewithcfs.blogspot.com.
Have had CFS/CFIDS since 2002.
Two young sons have CFS/CFIDS.
CFIDS Association of America
Various listserves that provide up-to-date information on CFS research.
www.livewithcfs.blogspot.com
| User | Date | K | C | T | P | Comments |
|---|---|---|---|---|---|---|
| Gennady | 10/14/09 | 10 | 10 | 10 | 10 | Thank you very much |
| Harriet | 10/02/09 | 10 | 10 | 8 | 10 | Excellent, was extremely helpful and provided a ..... |
| adam | 10/02/09 | 10 | 10 | 10 | 10 | Thanks, very good info and very polite ..... |
| bruce | 07/28/09 | 10 | 10 | 10 | 10 | Dear Ms Jackson, thank you so much ..... |
| patricia | 07/26/09 | 10 | 10 | 2 | 10 | Thank you very much for the helpful ..... |
Hi, Deborah - First, I'd like to apologize for the delay in getting back to you. I've been severely ill with a bad CFS flare-up that lasted over a month, so my computer time has been pretty limited
Dear Kate - I apologize for not getting back to you sooner. I've been very, very ill myself for weeks and unable to spend much time at the computer. I have Chronic Fatigue Syndrome (CFS), an immune
Dear Genna - I'm not really an expert on pain, but I'll do my best to answer your questions. I've had CFS for 7 years, so that's what I know best. It is possible that you have CFS, although pain
Dear Harriet - First, I'd like to apologize for the long delay in responding to you. I've been in a very bad crash this past week and unable to spend much time at the computer. I wanted to give you
Dear Adam - First, I'd like to apologize for the long delay in responding to you. I've been very sick this past week and wanted to give you a thorough answer. I am not an expert in sleep problems

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