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I have had CFS since March 2002. My 14-year old son and 10-year old son also has CFS. I have a scientific background (chemical engineering) and have read and researched extensively to try to help myself and my sons to improve our symptoms, with some success. I`ve also conferred with some of the top CFS doctors in the U.S. I have a lot of hard-won experience working with school systems to get appropriate support for my sons. This is a very debilitating and isolating illness, and I would be glad to help anyone else who is struggling with CFS themselves or with a family member. You can read about our experiences in learning to live with CFS at my blog: www.livewithcfs.blogspot.com.
Have had CFS/CFIDS since 2002.
Two young sons have CFS/CFIDS.
CFIDS Association of America
Various listserves that provide up-to-date information on CFS research.
www.livewithcfs.blogspot.com
| User | Date | K | C | P | Comments |
|---|---|---|---|---|---|
| Bonnie | 05/18/12 | 10 | 10 | 10 | Thankyou so much with answering my questions ..... |
| mahmoud | 05/16/12 | 10 | 10 | 10 | |
| Melissa | 08/09/11 | 10 | 10 | 10 | thank you very much |
| Adam | 02/22/11 | 10 | 10 | 10 | I simply can't thank You enough Suz ..... |
| JOsh | 12/18/10 | 10 | 10 | 10 | thank you so much! I will think ..... |
Dear Mahmoud - Chronic Fatigue Syndrome (CFS) does cause extreme fatigue like you've described, but it also causes many other symptoms which you didn't mention, including recurring sore throat or swollen
Dear Bonnie - I'm sorry to hear you've been suffering so much. It is quite possible that you do have CFS (which is known in the UK as ME). The fact that you are in the UK makes effective treatment
Dear Josh - I'm sorry to hear you have been struggling so much recently. Sorry for the delay in getting back to you, but my son was very sick this week (he's 17). The pattern you are describing
Dear Melissa - Sorry for the delay in getting back to you. With my kids at home during the day in the summertime, I have trouble keeping up with my computer-related work! Chronic Fatigue Syndrome
Dear Nathan - Sorry for the delay in getting back to you - my computer was out of commission for a few days. No, no cure for dysautonomia yet, but there are many ways to treat it. The best resource
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