You are here:
Rheumatology (including Arthritis)/Expert Profile
Expertise
I can answer questions about systemic scleroderma and live and internet resources to help you cope with this disease. I have personal experince with scleroderma, osteoarthritis, fibromyalgia, and Sjogren's Syndrome.
Experience in the area
I am a systemic scleroderma patient (12 years) and have been active in support online for nearly the same amount of time. I proposed the Usenet newsgroup alt.support.scleroderma and own the website ihavescleroderma.com.
Organizations
I am a board member and volunteer for the Scleroderma Foundation, Ohio Chapter.
Publications
Arthritis Today, Sept 1997, "A guide to the internet"
Education/Credentials
International Webmasters Association, Web Technologies Certification
Awards and Honors
Volunteer of the Year, Scleroderma Foundation, 2004; Advocacy Appreciation Award, Scleroderma Foundation, 2005
Average Ratings
Recent Reviews from Users
K = Knowledgeability C = Clarity of Response T = Timeliness P = Politeness| User | Date | K | C | T | P | Comments |
|---|---|---|---|---|---|---|
| Robin | 10/28/09 | 7 | 10 | 10 | 10 | Thank you. I just wondered if there ..... |
| Damiana | 08/30/09 | 10 | 10 | 10 | 10 | I am very grateful and I will ..... |
| Naila | 08/18/09 | 10 | 10 | 10 | 10 | |
| Mike | 08/11/09 | 10 | 10 | 10 | 10 | Couldn't have asked for a better answer ..... |
| Rod | 07/31/09 | 10 | 10 | 10 | 10 |
Recent Answers from Amelia Yaussy
2009-10-24 scleraderma and yoga:
The Scleroderma Foundation's Bluebonnet Chapter commissioned a yoga video several years ago and have had the instructor, Kathleen Randolph, teach a yoga workshop at their national convention. I attended
2009-10-09 undifferentiated connective tissue disease:
I'm so sorry you're in pain. I wish I could foretell where your "flavor" of connective tissue disease is taking you, but every single person out of the millions with them has a different case. Even my
2009-08-29 bee poison and djd:
I've never heard of apitherapy helping with osteoarthritis. The last time I knew of anyone utilizing it was for MS and it required actually being stung with bees! I experience two kinds of pain from
2009-08-17 Sistematic scleroderma:
Actually, depression is part of autoimmune disease, and not just because we're sad to have the disease. It's becoming more and more recognized as a symptom and proper treatment for it is increasing.
2009-08-10 No help only pills:
You did actually include that with your feet and hands turning red and purple. Raynaud's phenomenon, where blood vessels spasm shut and cut off circulation in response to cold or stress, can affect ears
©2009 About.com, a part of The New York Times Company. All rights reserved.