You are here:
K = Knowledgeability C = Clarity of Response T = Timeliness P = Politeness
N = Nominated for Expert of the Month
| Date | User | K | C | T | P | N | Comments |
|---|---|---|---|---|---|---|---|
| 2009-11-23 | Sarah | 10 | 10 | 10 | 10 | No | Thank you so much. |
| 2009-10-28 | Robin | 7 | 10 | 10 | 10 | No | Thank you. I just wondered if there were yoga teachers with classes for scleraderma patients. I'll take a look at the video. |
| 2009-08-30 | Damiana | 10 | 10 | 10 | 10 | Yes | I am very grateful and I will recommend this service because I find it very useful! |
| 2009-08-18 | Naila | 10 | 10 | 10 | 10 | Yes | |
| 2009-08-11 | Mike | 10 | 10 | 10 | 10 | Yes | Couldn't have asked for a better answer. Thank you!!! |
| 2009-07-31 | Rod | 10 | 10 | 10 | 10 | No | |
| 2009-07-09 | Lesia | 10 | 10 | 10 | 10 | No | |
| 2009-06-30 | Ginger | 10 | 10 | 10 | 10 | No | thanks so much |
| 2009-06-21 | Bernice | 9 | 10 | 10 | 10 | Yes | Thanks I will go back and ask them about this. I feel better knowing it's not just in my mind. |
| 2009-04-11 | Lorie | 10 | 8 | 10 | 10 | No | Thank you for taking the time to answer my question. |
| 2009-03-01 | Caroline | 10 | 9 | 10 | 10 | No | Thanks for the quick response. I have managed to get an appointment with my GP in couple of weeks so I'll request some further investigations. |
| 2009-02-25 | Mary | 9 | 10 | 6 | 10 | Yes | Thank you. I will wait and discuss this with my doctor next week. |
| 2009-02-20 | Mary | 10 | 10 | 10 | 10 | Yes | Thanks. She originally had the test done to check calcium levels, but she was aware of the fact that my muscles have been more painful lately. |
| 2009-01-28 | jayne | 10 | 10 | 9 | 10 | No | Thanks for your tips. I know this disease is one that requires patience & endurance. |
| 2009-01-20 | Heather | 10 | 10 | 10 | 10 | Yes | Thank You Amelia. Very quick reply!! It's helpful to know you are struggling through the issues as I am. Heather |
| 2009-01-06 | Heather | 10 | 10 | 10 | 10 | Yes | Thanks a lot for your help. I will try talking to my mom about going to the doctor and I will definitely start documenting the symptoms. |
| 2008-12-10 | jayne | 9 | 9 | 10 | 10 | No | I am seeing Dr San.Laks.@UCONN M.C. in CT (happy to say he happens to be on the list you linked). I am having a sclerod. & CREST pannel of tests. Hard to be patient patient. Hope your condition is being managed well. Thanks for your time & info. |
| 2008-12-04 | Allison | 10 | 10 | 10 | 10 | No | Thank you so much for your response! The way I was dismissed by the 1st doc was making me start to question my sanity!! |
| 2008-07-09 | Heather | 10 | 10 | 10 | 10 | No | |
| 2008-06-25 | Heather | 10 | 10 | 10 | 10 | Yes | |
| 2008-05-31 | Jeni | 7 | 9 | 10 | 10 | No | I sent you an email with a follow up. Thank you! ~Jeni |
| 2008-04-29 | Tina Blackwell | 10 | 10 | 10 | 10 | Yes | thanks, Amelia...I really appreciate your getting back with me so quickly! All your suggestions are good, and I know I need to act on them...Lately, I have not been doing anything to help "just me" and I know that is part of the reason that I have been feeling such a decline in my health and mental and emotional state...I will do as you suggested...I don't have many friends here in Columbia, even tho' we have been here for 10 yrs., and we know a lot of people...Everyone nowadays seems to be so busy with their families that it is hard to get "one on one" with anyone...I miss my dear best friend in Myrtle Beach...We don't get to see each other very often, unfortunately. Thanks again and hope you continue to improve, as well! god bless! tina B |
| 2008-04-13 | molly | 10 | 10 | 10 | 10 | Yes | So quick to respond, and so positive yet honest at the same time. |
| 2008-02-03 | sheryl | 10 | 10 | 10 | 10 | No | thank so much i already feel better |
| 2008-01-31 | Joy | 10 | 10 | 10 | 10 | No | |
| 2007-12-18 | Mary Jane | 8 | 6 | 10 | 10 | No | |
| 2007-11-19 | Holly | 10 | 10 | 10 | 10 | Yes | Thank you, Amelia, for the advice! |
| 2007-10-20 | john | 8 | 9 | 10 | 10 | No | tHanks for taking the time - this forum really helps those who are on their own at times. |
| 2007-10-01 | bev barkham | 10 | 10 | 10 | 10 | No | thank you will read brochure, |
| 2007-09-24 | Gary | 10 | 10 | 10 | 10 | No | Thanks for the information. I will check with her doctor whether she also has osteo. Thanks Again |
I can answer questions about systemic scleroderma and live and internet resources to help you cope with this disease. I have personal experince with scleroderma, osteoarthritis, fibromyalgia, and Sjogren's Syndrome.
I am a systemic scleroderma patient (12 years) and have been active in support online for nearly the same amount of time. I proposed the Usenet newsgroup alt.support.scleroderma and own the website ihavescleroderma.com.
Organizations
I am a board member and volunteer for the Scleroderma Foundation, Ohio Chapter.
Publications
Arthritis Today, Sept 1997, "A guide to the internet"
Education/Credentials
International Webmasters Association, Web Technologies Certification
Awards and Honors
Volunteer of the Year, Scleroderma Foundation, 2004; Advocacy Appreciation Award, Scleroderma Foundation, 2005

©2009 About.com, a part of The New York Times Company. All rights reserved.