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Volunteer

Amelia Yaussy

Expertise

I can answer questions about systemic scleroderma and live and internet resources to help you cope with this disease. I have personal experince with scleroderma, osteoarthritis, fibromyalgia, and Sjogren's Syndrome.

Experience

I am a systemic scleroderma patient (12 years) and have been active in support online for nearly the same amount of time. I proposed the Usenet newsgroup alt.support.scleroderma and own the website ihavescleroderma.com.

Organizations
I am a board member and volunteer for the Scleroderma Foundation, Ohio Chapter.

Publications
Arthritis Today, Sept 1997, "A guide to the internet"

Education/Credentials
International Webmasters Association, Web Technologies Certification

Awards and Honors
Volunteer of the Year, Scleroderma Foundation, 2004; Advocacy Appreciation Award, Scleroderma Foundation, 2005

Encyclopedia

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